Speaker - Annie-Danielle Grenier

I’m available to give lectures and participate in panels virtually!

Specialized in raising awareness and educating about rare and invisible disease; I speak about resilience, the importance of adaptation and inclusion.

Life’s obstacles are not an obstacle to happiness!

I also offer virtual workshops, called La force du rare (The Strength of Rare), with colleagues who are also living with rare disease. Those workshops are for healthcare professionals, to look together for solution ideas to improve rare disease care. The workshop is only in French for the moment, but could be translated if there’s enough demand.
This project has been funded by the Fondation de l’Université de Montréal and the Montreal Clinical Research Institute’s Foundation, and follows a study done from 2020 to 2022 on the ethical impacts of life with a rare disease.

For more info you can contact us by email.

Life’s surprises gave me plenty of content to talk about as well as the necessary experience.

Having done theatre in college and then being involved in student politics in university, I gained a lot of experience in the art of speaking in front of a crowd.
I was later in charge of communications in a patients’ association, which led to various interviews (radio, newspapers).

I had a crash course in public speaking and media communication during the adventure of a lifetime in China in 2010: an international contest for the chance to go work with giant pandas in Chengdu.
As soon as my selection among the 12 international participants was announced, I received interview requests, in French as well as in English, on the radio, on TV and in newspapers. However, most of the media exposure happened when we got to China, where on top of press conferences we gave interviews for international media (France, Italy, China, USA, etc.)

When I came back, I gave a few lectures about this adventure, at the request of friends and acquaintances, and I got hooked!

I’ve also given multiple interviews (radio, TV, newspapers, web) about life with rare and invisible disease in the past few years.